Asperger’s Syndrome

During a counselling session last week the Counsellor has admitted  that he is only able to help so far and has identified a number of things. We have been looking at things in depth and using mood diary’s to help. But a lot of the underlying issues we found are ingrained in my mind and cannot be changed, which is causing issues. He thinks I will probably be Diagnosed with Asperger’s Syndrome and he thinks getting the diagnosis will help, in my understanding and will open up other treatments more geared to help me.

I will still be seeing my Counsellor a couple of more times to help with anxiety symptoms and coping mechanisms but wont be a complete fix. Have chased up the Autism assessment and waiting to find out how long the waiting list is.

 

What are the Symptoms of Asperger’s Syndrome?

Symptoms include

  • Difficulty maintaining eye contact
  • Difficulty managing social situations
  • Unable to respond appropriately in verbal interactions
  • Unable to decipher facial expressions or body language
  • Unable to show emotions, may seem emotionally robotic
  • May focus solely on their own needs
  • Focus in on specific subjects they are interested in. Usually the topic is very literal.
  • Resistant to change. May expect the same thing to occur day after day.

On-wards and upwards

Taking a break works wonders. The start of September was particularly difficult, I was very depression and struggling with a number of things. I had also restarted counselling with Bury Healthy Minds.

Took a weeks break and headed to London to visit family and this coincided with a number of Transport events and open days. We had a Trip on London’s Mail Rail, Visited Brooklands Museum and the London Bus Museum, this was followed by visiting the London Transports Acton Depot Open day. And the week was rounded off with a spectacular look behind the scenes of London’s Charring Cross Tube station with Hidden London.

Concorde at Brooklands Museum:

London Bus Museum:

Acton Depot Open Day:

Charring Cross, Hidden London:

Saw almost every type of transport imaginal. Am a huge bus and train enthusiast and these really were very special moments that really did make my year! Could have spent hours or days exploring these places more. So much to see. Had a very positive impact and really need cheer me up and get me out of my depressive episode I was in before.

Am now back in Manchester and working with counselling to hopefully improve things. We’ve had 3 sessions so far and have delved right into thoughts, my past and my beliefs. Its quite amazing how intertwined everything is and even my counsellor is realising that focusing on one particular thing wont work or really help. So i’m doing numerous Mood Dairy’s to record what i’m thinking and feeling during the times between the sessions to see if anything stands out. Feeling very positive so far and think my current counsellor is actually starting to understand what life is like for me. On-wards and upwards…

Losing grip on reality

I feel am losing my grip on reality. I just don’t seem to know what is real or what i have dreamed / made up / imagined. It’s a bizarre feeling. I seem to have lost the ability to put things in chronological order / timescale. Things that happened weeks ago seem like yesterday and things that happened today/yesterday seem to be from weeks ago. I don’t know if this is a coping mechanism or something else. Am getting confused with things that have actually happened and things that i have dreamt and imagined. I know i’m not losing my mind but my mind just seems to be a lot more jumbled than it normally is.

I Struggle with getting things done, always thinking I’ve got plenty of time to do it and then realising that i don’t. I’m stressed and worried because i feel like i have so much going on at the moment and in reality when sitting down and working it out, its not a lot 2 or 3 big things and there’s nothing i can do straight away its waiting for appointments or waiting for the correct time to arrive. When I was ‘well’ before my breakdown, i was working as well as coping with everything else and now i cant seem to 2 or 3 things. It is so depressing and humiliating. I know i’m unwell and not in great health but it just feels wrong and makes me feel guilty and makes me feel like a failure and i’m letting everyone and the world down. I didn’t ask to be Ill and don’t like asking for help, but know i’m struggling. It’s very difficult to ask for help as i don’t know what help is needed/required or what is available.

I’ve recently restarted counselling and this may be what has thrown me out of whack lately as we did talk about a number of different things in-depth. Its scary being scared of everything and talking about it as it really does make you think you, you are crazy.

On the flip side there has been some good things happening.

  • Restarted counselling, I know its small steps and its working on one problem at a time, but anything is better than just stopping and doing nothing.
  • Under going tests for Autism It’s not another thing I suffer from, but a solution or answer to why and how i react / think of things. And so far things are making a lot more sense in regards to this. Have only had one diagnosis session so far and the result was that i have autistic traits in all 4 areas.

Running on Empty

Feeling both physically and mentally drained. Its been a while since my last post, but this past month has been exhausting. I feel I’m just going through the motions.

I have completed my one on one counseling sessions with Bury Healthy Minds and am now on a waiting list for group anxiety therapy. Their will be 8 to 10 people in the group. Hopefully I will be able to cope with it and come out stronger than when I went in. During my one on one sessions with my counsellor she recommended that I had a blood test done by my GP and that I get referred for an Austism test ( GP agreed and just awaiting appointment). The results from the blood test came back and showed high levels of enzymes in the liver, so GP has referred me for an Ultrasound at the hospital.

Having an anxiety condition and suffering from depression I have difficulty waiting on things. Waiting on referrals or test results, gives time for my mind to race through the what ifs? Hopefully one day people won’t have to wait.

My counsellor, family and friends have all wanted me to reapply for PIP (Personal Independence Payment). I had been holding off on this as its so complicated and delves deep into thoughts and physical issues. I had already received and completed a medical questionnaire back in December for the DWP (department of works and pensions) and said I might be called for a health assessment. So wanted to get this out the way first. After 3 months I hadn’t heard anything so applied for the PIP.

My worst nightmare came true when I received both the PIP form and a letter asking for me to attend the health assessment, arrived on the same day. I’m so scared, its my illnesses and me being judged and vetted. I understand the need for them, but wish their where less intrusive ways, and better questions than “So why haven’t you killed yourself yet?” Being asked. I know in my mind its a standard question and why they ask it, but makes me feel insignificant, unwanted and makes me feel a burden and wasting peoples time.

I didn’t choose to have physical illnesses and didn’t choose to have mental illnesses but they way I have been treated wether intentionally or not, makes it feel like its my fault. Which then makes the depression deepen and the anxiety worse. I’m sure I’m not the only one to feel like this but really is a poor way of handling things.

My GP has changed and increased my pain medication, is a lot better than the last one but doesn’t completely rid me of pain. As anyone who’s been in pain for a long time can understand it too leaves you feeling exhausted.

I really did think I was getting better at the start of the year but the past 2 months have shown me that although there might have been some improvement there is a long and hard road to recovery to go. That is indeed if I can recover. I know I won’t ever be the same again, but hopefully I will be able to wake up in the morning with enthusiasm and have a pain free day followed by restful nights sleep eventually.

Anxiety is Building Up

Anxiety is building up and can feel i’m struggling / fighting off a panic attack. I’ve had a lovely few days with my parents who came to visit and i’m quite proud of myself i pushed myself a lot and survived big crowds and lots of decision making. Even though it was family i am very socially tired. Its kind of hard to explain, but when you’ve been active and been in a high anxious state for a while, you need a number of days to relax and chill out to get your anxiety and stress levels down. Something that i think has definitely improved compared to a couple of years ago, but does leave you feeling both mentally and physically drained.

I’m very worried/scared/anxious about getting the new Hearing aids. Have had a hearing aid for my right ear for just over a year now. And now I will be getting one for the left ear as well. After getting my first hearing aid, i realized how much i had been missing and felt so guilty and angry at myself for not realizing it earlier. I don’t know If having 2 hearing aids will make the alot of difference or not to what i can hear, hopefully will, but nervous about it all the same. Then there’s the interaction with the hearing aids and the TV, Telephone and mobile phone. Will i then need adaptations to use these? (TV Loop System, Special hearing aid compatible phones). Its a lot of unknowns and i know there’s nothing i can do about it until i get the hearing aids fitted, but i’m still panicking over it anyway. There’s a part of me that’s exciting about it, i know how much a difference my first hearing made.

Then as we go into April, benefits are reviewed and changed. Monthly payments for bills (Gas, Elec, Water) Have been changed as well. I wont know whats happening or whats going out and what if anything i’ll be left with after. I hate talking money and fiances and really dislike change. Again I know there’s nothing i can do right here and now, but i’m panicking about it.

I So which there was a simple switch to turn off my emotions, I really do hate feeling this way and still feel so very guilty that I’m mentally unwell. I always expect the worst, that way its a surprise if things are better than imagined, (Will need to talk about this to my counselor and see if we can do anything to work on it, it might come down to confidence issues again).

I Have looked into a number of disability pages and grants and to be honest its all very confusing and don’t really know where to start. Most of them you need an assessment or need to contact the charity/company directly, but when your scared of everything and really don’t like meeting people or talking on the telephone it leaves you a bit lost.

Advice, Assistance, Directions…

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I don’t know what to do for the best…

When i finished my last counselling session in 2014, i was starting to get back on track and finding my way again. The sessions helped with my PTSD. My flashbacks and nightmares were the biggest challenge at the time. Then in January 2015 i felt strong enough to get help for my next issues which was anxiety and my GP Referred me for CBT (Cognitive Behaviour Therapy). Which I agreed was right for me at the time. However i was expecting a 12 month waiting list. I’m now 9 months in and social anxiety is my biggest issue, however I’m not sure that CBT is now right for me in my current state of mind. I think talking to someone about my anxieties and things that had happened in my past (domestic abuse and past issues) that seem to be running rampant around me mind at the moment.

I’m scared of saying anything to my GP or asking for different help, cause i really don’t know what is for the best. I don’t want to end up in the same situation, if i cancel or change the CBT, i might then go back on a waiting list for another 12 months and that wont help. But at the same time, doing counselling/CBT when your not ready for it or in the right frame of mind, is also dangerous. (Numerous GP’s and mental health people have said this).

I feel i’m not only letting myself down, but letting friends and family down. Everyone wants me to get better ASAP, even though there is no official timescales for recovery. I don’t want to be a burden, a worry or a cause of stress for anyone.

There is always the crisis team, which i know have helped others before, but without a GP or someone referring me, i feel like a fraud asking for help. I just don’t know what to do or where to go!

 

Counseling Continues…

Since my breakdown have been struggling with a lot of things. I was referred to Counseling through my GP. I Had an assessment with the Mental Health team where i live and we agreed that the Sleeping issues and Flashbacks were the first priority. I wasn’t sleeping at all. And this mean me very tired, no motivation and making me very depressed. I couldn’t sort anything out until my sleep had been either sorted or at least helped with it. I was offered Counseling from the Mental team and agreed a course of treatment – Neuro-linguistic programming (NLP) as an approach to coping with the flashbacks and nightmares. As per the current rules, i had a maximum of 6 sessions booked for me, to go through the steps to the road to recovery.

Gotta say it had been great and worked really well, My Counselor is great. The NLP approach has helped me to get rid of the flashbacks and reduce the amount of nightmares. All the nightmares related to the November incident i can now control and I’m not in such a state waking up. I can actually fall back to sleep (most times) after having a nightmare.

I’m still having nightmares but no where as severe as they were and still having lots of trouble sleeping. I have discussed the thoughts and reasons around why this is affected me and we have come to the conclusion that its now the Anxiety disorder which is now the main thing.  A lot of the nightmares and trouble sleeping are now down to being in a constant anxious state. The Counselor feels that we have completed and done everything to resolve the nightmares and flashbacks and its now time to look at the next treatment. At the moment the way the Mental Health service works is that you are first referred by your GP, you have an Assessment and are allotted up to a maximum of 6 sessions. They Will only focus at one particular issue at a time. (So as i have multiple Mental health issues, i would need to be referred multiple times.) Once you have finished with the 6 session you will need to wait at least 6 weeks before starting any new sessions.

I had my 6th session on Friday, however my counselor wasn’t happy to discharge me from her care. I have been described as an ‘An at risk Adult’ and ‘A vulnerable person in my current state.’ As we have reached the maximum number of sessions, she had to discuss my case with her Manager. They have both agreed to continue the Counseling on an ongoing basis and they are unhappy for me to be discharged from the Mental Health team and counseling at this stage. Mainly due to the risks involved, but also because of the relationship and trust that i had built with my counseling and she feels were are making progress together and that if i was discharged. The things might get, worse and may slip back into old habits and undo the good work. So will start working now on the Anxiety.  [whohit]Counceling-continues[/whohit]

So both good and bad news. Good news is that i wont have a break in terms of my therapy and wont have to change counselors. This means i should hopefully be able recover and move on with my life after my breakdown. The bad side to it is that I’m still so unwell they wont discharge me.