Accepting I’m different

Throughout my life, I’ve struggled to fit in. things people find easy, I dont and came up with numerous ways to fit it or ways to accomplish things. Despite this I’ve always been told I’m doing things wrong or someone would say “I wouldn’t have done it that way.” Nothing i have done has been good enough and honestly throughout my life I’ve felt a failure.

However since my autism diagnosis, my life and outlook on things has changed dramatically. Its difficult for me to accept that I’m different and that I am in fact disabled. Everything i have been through in my life and the way i react to things or the way i think, is different to everyone else. Thats a hard thing to get my head around. It wasn’t until my diagnosis that certain aspects of my life began to click in place. I’ve started to realise some of my reactions and feelings are autistic traits.

Because I’ve tried to fit in to the world around me and to be accepted by people I have learned to mask things. (Masking is a process in which an individual changes or “masks” their natural personality to conform to social pressures, abuse, and/or harassment). My counsellors and Doctor have agreed that masking is wrong and I should stop trying to conform to things and be my true self. This is where things are getting really difficult. I’m trying to be myself and just do things that i enjoy, however for me to do that i’m starting to ‘let go’ / forgetting to do things that would be classed as ‘normal.’ e.g. Energy bills or managing money that i really dont understand it and so am kind of ignoring it and hoping for the best, which i know isn’t the best plan. There are so many things that i still have to try to conform to and things that i have to do. Which goes against being myself and trying to bring down the ‘masks’ I’ve created.

How do i be myself and restart my life as an autistic adult if i cant let go of the image of a ‘normal’ adult i pretended to be. It really is a minefield and that’s before I even get onto my other health and learning Conditions.

Invisible Disabilities

I suffer from a number of Invisible Disabilities including Anxiety, Depression, PTSD, being hard of hearing and having musculoskeletal disorders. On a good day people would never know, but there are times when some help is needed.

I’m very conscious of my disabilities and don’t like to let it show it. Probably stems from the stigma around mental health and people with disabilities and also my own feelings of not letting my disabilities affect my life. Everyone else can do it/things so why cant I. I’m sometimes my hardest critic. I don’t like to complain that i’m in pain, or saying I don’t feeling right, because that’s all I’ve ever known, just assumed that’s how everyone is. however through my counselling I’m starting to come to terms with things and starting to see things in a different light.

I Have seen that Transport for London is rolling out a campaign so people with hidden disabilities can wear a badge which says “Please offer me a Seat” BBC news Article I think this is a really good and useful idea. The only down side is that its only for London. I Sometimes struggle to stand for long periods and when travelling on public transport it isn’t always a smooth ride, as you are jostled about (no matter how good the driver), for me this can be very comfortable as my body moves one way or the other, the pressure on my knees and my muscles increases and decreases something I cant prepare for it and can cause more pain. I don’t like to attract attention and wouldn’t have the confidence to ask someone for a seat, even if they are sat in a ‘priority seat’ or a disabled seat. Cause like me they might have invisible disabilities themselves. So a badge would be a good idea. When I have had to rely on crutches to get about people have been more than willing to help me and offer seats, but i don’t always require crutches and being a 34 year old man people wouldn’t think that i’d be disabled.

With more awareness of invisible disabilities and illnesses the Metro News website did a great article of “Why are people with an invisible illnesses so scared to ask for a seat on public transport?” link to article here

So I’ve decided to take a very small step and order myself one of these:

16mm Round, Disabled Lapel Pin Badge

Invisible Disabilities are hidden, and not something to be proud of or to show off. But people wont know how to treat you if they are not aware. So a small disabled badge on my clothes, might not change anything, but some observant people might see it and may offer me a seat or help. Cant hurt to try?

Truthfully, I am ashamed that i’m disabled and that i’m a different to everyone else. But with counselling I’m realizing “Its OK to be Me” and I have to accept that I am disabled and shouldn’t be ashamed of it or ashamed of asking for help. I don’t think it’ll make a huge difference but even any small difference has to be worth it?